Do you know Parent CVI Advocate Jessica Marquardt? If not, you should! In 2018 she launched Kaleidoscope: The Cortical Visual Impairment Podcast, where she discusses the growing public health crisis within the world of vision impairments (spoiler alert: it’s CVI!), sharing stories of neuroplasticity and visual perception.

Jessica launched this much-needed podcast the same month my daughter, Rosalie, was diagnosed with CVI – so listening to Kaleidoscope has been an integral part of my journey as a CVI parent. I have eagerly devoured each new episode, taking heart that I am not alone and gaining insight, tips, and inspiration from others directly impacted by CVI. When Jessica asked if I would sit for an interview I felt honored and, of course, said yes!

You can listen to my interview in Episode 10: “Rosalie, Small but Mighty.”

From the episode description:

“Stephanie talks about Rosalie’s tremendous progress, how to advocate for CVI-appropriate early intervention services and that moment when you realize you are a special needs parent.”

Please make sure you check out the other episodes of Kaleidoscope: The Cortical Visual Impairment Podcast as well! You can subscribe (and leave a comment or rating!) on any of your favorite listening platforms, such as iTunes, Stitcher, or Spotify. Personally, I utilize the free Castbox App on my phone. Happy listening!

More about Kaleidoscope: Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. But there’s hope. Due to the brain’s ability to change (neuroplasticity), a child’s vision can improve. So why isn’t anyone talking about this public health crisis? We will. Tune in for a monthly discussion.