Everyday CVI

Embedding CVI Strategies into Everyday Family Living

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When you pack up & move across the country it makes good sense to donate, recycle, & throw away whatever you no longer need. ♻️ This first picture captures the handful of "Phase I" items I can still use now that we are way beyond it. Swipe right to peek 👀 at what I got rid of; I was shocked to realize there was a time we used every.single.one of those things - and that we haven't needed them for even longer. 😲 Whether your improvements in functional vision have been joyfully quick or painstakingly slow, KEEP AT IT! 👏 Always presume competence. 👈 Harness the gift of neuroplasticity 🎁🎁🎁 by implementing appropriate strategies for a child's development & CVI Range Score. 👌 . It might feel far away, but someday you might find yourself rejoicing over a trash bag full of shiny mylar & all it represents.✌💛 #CorticalVisualImpairment #CVI #neuroplasticity #CVI10characteristics #CVIphaseI #CVIphaseII #CVIphaseIII #CVIRange #EverydayCVI

CAPABLE ❤ LOVEABLE 💛 HUGGABLE 💚 UNBELIEVABLE 💙 One month ago this little girl would barely tolerate side sitting for more than a minute *with* hands-on support & encouragement. And look at her now! 🙌 This t-shirt from @theablefables is so perfect for her - and with the solid black background (low complexity) and bright letters (color) it is "CVI-friendly," too! 😍 #CorticalVisualImpairment #CVI #EverydayCVI #CVI10characteristics #VisualAccess #CVIwarrior #HydroWarrior #Hydrocephalus #WeAreAllAble

I talk a lot about my daughter's CVI (because raising awareness is KEY to advocating for her visual access & social inclusion), but I cannot comment on how amazingly well she handled this wedding reception without explaining more. Imagine you can see what everyone else sees - but you have to focus really hard to understand what you're looking at. Bright colors, movement (or shiny objects that create an illusion of movement), or lights help draw your visual attention & can help you pick out (or distract from) the visual target you're meant to focus on. Complex patterns or clutter make it more difficult to process what you're seeing - as well as quick movements that happen too fast for your visual brain to make complete sense of. Now imagine, too, that your brain is working this hard to visually process in an environment with lots of people moving around making tons of noise WITH constant background music.🎶 When we're sick, tired, or overwhelmed, do you know what sense is the first to go? SIGHT. 👀 We lay down & close our eyes, which gives our brains a rest. This is true of typically-sighted individuals, so imagine what happens to a person with CVI in a complex sensory environment where it is a constant challenge to visually focus. They call it a "CVI meltdown" for a reason. Because imagine how stressful it is when you're somewhere new and your brain becomes too tired of seeing & your vision checks out. You feel (and act) blind. So, it is no small thing that this girl attended an ENTIRE wedding reception - JOYFULLY. 😄 Yes, we took her vision impairment into consideration as we always do, but we had to adapt our actions surprisingly little for her to have an absolute ball. Did she "use" her vision the whole time? Of course not. I saw her visually "check out" several times as she listened intently to the many sounds, processing & experiencing it through other senses...but she wasn't scared. Or overwhelmed. She didn't appear any more tired than she would be from simply staying up an hour past her bedtime - & she couldn't get enough of the dancing! 🙌 Not every event will go this smoothly, but when they do it's worth celebrating! 🎉 #EverydayCVI #CVI

Children with CVI do not have access to incidental learning (you know, the learning people do just by looking👀) the same way their typically-sighted peers do. Because of this, I intentionally provide tactile, active learning experiences for my daughter with CVI. Visit the blog for an intro to "CVI-friendly" TACTILE SENSORY PLAY! ❤ Head to everydaycvi.com (link in profile👆) ➡️ Menu ➡️ Archives ➡️ July 2019 ☀️ #CorticalVisualImpairment #CVI #EverydayCVI #VisualAccess #PowerofPlay #HandsOnPlay #SensoryPlay #ActiveLearning

Are you new to CVI? Or just in search of more information? Check out my list of 7 introductory websites, articles, & books PLUS two ✌ ways you can take *immediate* action after a diagnosis. 💛 Head to everydaycvi.com (link in profile👆) ➡️ Menu ➡️ Tags ➡️ Books 📚 #CorticalVisualImpairment #CVI #EverydayCVI #CVIstrategies #CVIschedule #CVIRange

What is a "felt wall," you ask? 🤔 Well, it's exactly what it sounds like! Details of how I made it, more photos, & an example of how I pair the 2D images with 3D objects and salient feature language can be found on the blog. 💛 Head to everydaycvi.com (link in profile👆) ➡️ Menu ➡️ Tags ➡️ Salient Features #CorticalVisualImpairment #CVI #EverydayCVI #DefinedSpace #SalientFeatures #Play #PathtoLiteracy #CVILiteracyAwareness

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