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Everyday CVI

Embedding CVI Strategies into Everyday Family Living

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I stumbled upon this book at the library today when I wasn't even looking for it, which was exciting because it's been on my "neuroplasticity reading list" ever since, well, basically since having a neuroplasticity reading list became relevant to our everyday lives. 😉 I'm excited to dive in, not just because it should be a fascinating read, but because this also symbolizes that life is becoming a little more normal around here again. 😅 The fact that I feel like I *might* actually have time to read a book all the way through after months of moving-across-the-country chaos and survival mode 😥 means we have reached the light at the end of the tunnel.💡Thanks for following along, despite my lack of time for blogging during our moving process in recent months! 💛 Now tell me, what's on YOUR "neuroplasticity reading list?!" 📚 #neuroplasticity #visualbrain #CVI #CorticalVisualImpairment #EverydayCVI

Thank you, @perkinsvision, for all that you do to provide awareness, education, and advocacy for those of us impacted by CVI! 💛 #WorldSightDay2019 #EverydayCVI

Her sign reads, "I've had more brain surgeries than birthdays." 🎂 Not only is September her birthday month, but it's when we raise awareness for both Hydrocephalus *and* Cortical Visual Impairment (CVI)! 📣📣📣 Hydrocephalus is a brain condition which has no cure and the ONLY current treatment requires brain surgery. 😔 Shunt systems commonly experience complications and malfunctions, typically resulting in MORE surgeries. 👎 Our sweet girl turns 2 this week and has already had 4 brain surgeries. 💔💔💔💔 And did you know??? At least 1 in 3 children born with Hydrocephalus has a vision impairment - and it is a major cause of CVI. 👈 CVI is a brain-based vision impairment that has nothing to do with acuity, but everything to do with visual recognition & interpretation. The eyes see what others see, 👀 but the brain has difficulty processing it. This is a lifelong disability of visual access, ♿ but people with CVI can *improve* their functional vision with specific interventions that are appropriate to their strengths, weaknesses, and CVI phase (there are 3)! Learn more at 👉pcvis.vision and/or head to everydaycvi.com to read about how our family embeds CVI strategies into our girl's daily life. Happy birthday, Rosalie! 🎂 You may be small, but you are a mighty little warrior! 💖💪 @hydroassoc #Hydrocephalus #HydrocephalusAwarenessMonth #NoMoreBrainSurgeries #NoMoreBS #HAM2019 #CVIwarrior #CorticalVisualImpairment #CVIAwarenessMonth #EverydayCVI #AdvocateLikeaMother

You know you're on the right track when the other customers who purchased an item are *clearly* CVI parents, too. 😉 (We also have all 4 of those books! 😂💛) #CVI #CorticalVisualImpairment #EverydayCVI #CVI10characteristics #Light #LightUpToys #CVIAwarenessMonth

You guys. Y'all. Everybody! 📣 I stumbled upon this gem at a local toy store and have never been happier to spend $18 for a soccer ball. 😅 It's soft, easy to grip, and has colorful mesh spots that provide extra grip and present a fun, tactile experience. 😍😍😍 R has a birthday coming up and I'm actively working on colors and shapes (especially "circle") with her, so we snagged this seemingly made-for-her ball as a gift. 🎁 She immediately loved it in the store (which is not always the case with CVI & novelty), so I cannot wait to give it to her soon! 🎂😘 (P.S. a quick online search revealed they also have a WHITE version with colorful spots, which I think could be even more visually accessible 👌 for older/more mobile kids with CVI that can actually play in the grass!) #CVI #CorticalVisualImpairment #EverydayCVI #10characteristicsCVI #color #complexity #novelty #tactile #SensoryPlay #CVIAwarenessMonth

Any parent that has moved with young children knows: unpack and organize the kids' stuff first! 🏠 When you have a child with CVI this becomes *especially* important; the novelty alone in a new environment can be visually confusing! So my unsolicited CVI mom moving tip is this: 👉even if it's not 100% how you want it forever, DEFINE A SPACE for your visually impaired child right away! 👌 Place familiar, bright objects/toys somewhere with low visual complexity. This defined space can serve as a much-needed visual anchor for your child as you unpack, whether you moved 1 mile down the road or 700 (give or take😉). #CorticalVisualImpairment #CVI #EverydayCVI #CVIAwarenessMonth #CVIAwareness #CVI10characteristics #10characteristicsCVI #novelty #complexity #color #DefinedSpace

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