Welcome, 2023! Wow, it’s been awhile since I’ve created new content – so if you’re still following along I sincerely thank you. I posted a few things throughout 2021 and 2022 on the blog’s corresponding Instagram and Facebook pages, but for the most part I’ve been focusing my time elsewhere since the end of 2020.
But it’s a new year! And while I’ve never been big on new year’s resolutions, my life as a “medical mom” keeps me so busy that I doubt I would ever find the time to share more of our everyday CVI strategies unless I make a conscious effort to prioritize doing so. In 2023 I’m resolving to do just that!
The landscape of available CVI resources has changed drastically since I first launched Everyday CVI, so let’s kick things off by highlighting a few that have become my “go-to”s in recent years! Whether you’re new to a CVI diagnosis or have been navigating the blind/visually impaired world for awhile, I hope this list is helpful to you.
My Go-To CVI Resources
- American Printing House for the Blind (CVI)
- CVI Now (Perkins School for the Blind)
- CVI Resources (Christine Roman, PhD)
- CVI Scotland
- Pediatric Cortical Visual Impairment Society
- Seeing Sadie and CVI
- NEW! The CVI Scholarship
Please be sure to check out The CVI Scholarship, run by CVI parent Kira Brady. By selling merchandise that celebrates CVI and neurodiversity (shirts, mugs, tote bags, etc.), The CVI Scholarship provides financial assistance to families that incur expenses traveling long distances to seek a diagnosis, care, or assessments for a child with CVI. To support this mission, I purchased a “Leaders in the Field” logo mug in red (pictured below). It makes me feel like a total imposter to even dare imagining my name listed amongst true CVI experts and powerhouse leaders in the field, but as a parent advocate it’s fun to dream about how I might contribute to our CVI community in some small way! By purchasing something from this scholarship fundraising campaign YOU can make a direct impact that provides assistance to CVI families in a tangible way.
For even more educational resources, check out my old post titled “Introductory CVI Reading (For Parents or Professionals)” and/or the resource page here on the blog that is perpetually under construction. Happy reading – and Happy New Year!